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How and When is Autism Diagnosed?

Autism Learning Collaborative

Learning that your child has a disorder of any kind can be overwhelming. And nowadays, with limitless information on the internet, any milestone missed may send you into a frenzy of searching. Therefore, it’s essential to know where to look for accurate information so that you can find the proper support for your child and yourself. Depending on the age of your child, you may wonder about Autism diagnosis in 2-year-olds all the way up to teenagers and beyond, but the sooner you understand the situation, the better. 


“1 in 6 U.S. children aged 2–8 years (17.4%) had a diagnosed mental, behavioral, or developmental disorder.” CDC


This blog works as a great starting point if you have questions about your child’s development. It’s hard enough being a parent, not knowing if what your child is doing is considered “on-level” for his age group. Throw in the concern of a disorder diagnosis, and it feels like you’re being pulled into an overwhelming whirlwind of concern. Given the importance of an early Autism diagnosis for children affected by the disorder, it’s best to know the signs to look for. 


If this sounds too familiar, your internet searching got you to the right place. So take a deep breath, let it all go; we’ve got you covered from here.


What is Autism Spectrum Disorder?


It goes by many names. ASD, Aspergers, Autistic, On the Spectrum… and the fact that this disorder has so many names is very fitting because Autism presents itself in many different ways. 


“Every person with Autism is genuinely unique.”


Autism spectrum disorder (ASD) is a disability in the brain’s functioning. It is classified as a spectrum disorder because of the wide variety of ways it presents itself. People diagnosed with ASD may communicate and interact with others differently. They also may learn differently than their peers. A few of the signs of someone with Autism are:


  • Avoiding eye contact
  • Uses few or no facial expressions or gestures
  • Shows little interest in peers
  • Shows repetitive behaviors
  • Presents development delays


This is a shortlist, and someone with Autism may show one or all of these. Every person with Autism is genuinely unique.


When Can Autism Be Diagnosed?


The earliest signs of Autism are the absence of expected behaviors.  This is why it is so important to schedule your child’s well checkups. It’s there you can ensure your child is growing and developing according to expectations. An experienced professional can diagnose ASD in toddlers as young as 18 to 24 months. Still, ASD is often not diagnosed until 3 to 5 years of age or later. While those unfamiliar with the intricacies of the disorder may have expected that age to be higher, autism diagnosis in a 2-year-old is surprisingly common, and this early discovery can be critical to the child’s mental and emotional wellbeing.


“In 2021, the CDC reported that approximately 1 in 44 children in the U.S. is diagnosed with an autism spectrum disorder (ASD), according to 2018 data.“


If you feel like your child is not developing similar to his or her peers, it’s essential to bring it up with your child’s pediatrician. You may also want to complete the online autism screener, and discuss the results and your concerns with your child’s healthcare provider.


How is Autism Diagnosed?


Wherever your child falls on the spectrum, getting an autism diagnosis is a two-stage process, and it starts with your pediatrician. The diagnosis of Autism is not a simple mouth swab or blood test. The diagnosis is based on behavioral symptoms. 


The first part of a diagnosis usually happens during a regular well-child visit with a verified screening. The doctor will then refer your child for a comprehensive diagnostic evaluation if necessary. When autism can be diagnosed, your pediatrician will be the first medical professional to report it and refer you to a professional who specializes in behavioral disorders. 


The American Academy of Pediatrics (AAP) recommends developmental and behavioral screening for all children during regular well-child visits at these ages:


  • 9 months
  • 18 months
  • 30 months


In addition, AAP recommends that all children be screened specifically for ASD during regular well-child doctor visits at:


  • 18 months
  • 24 months


If you’re unsure if your child has been screened, you can ask for a screening. 


It’s important to note that you don’t need to wait for a diagnosis of Autism to receive services to address developmental delays. You can access these services free of charge through your state’s Early Intervention program (ages birth – 3) or your school district’s Special Education Office (age 3 – 21). Research shows that early intervention can provide the best outcomes. 


It’s nothing to be anxious or ashamed about, early intervention provides your child with even more personalized assistance in the classroom, and helps to continue to nurture your child’s growth, instead of making him or her feel frustrated by limited support. 


“Early detection means your child, and you, get help and support sooner.”


Below are signs your doctor is checking for at each well-visit. (taken from the CDC website) 

It’s important to note that delays can be due to other factors involved. If you have any concerns, please call your pediatrician’s office or write your questions down for your next visit. 


Autism Diagnosis Checklist


At 9 Months, talk to your child’s doctor if your child:

  • Doesn’t bear weight on legs with support
  • Doesn’t sit with help
  • Doesn’t babble (“mama”, “baba”, “dada”)
  • Doesn’t play any games involving back-and-forth play
  • Doesn’t respond to own name
  • Doesn’t seem to recognize familiar people
  • Doesn’t look where you point
  • Doesn’t transfer toys from one hand to the other

 

At 18 Months, talk to your child’s doctor if your child:

  • Doesn’t point to show things to others
  • Can’t walk
  • Doesn’t know what familiar things are for
  • Doesn’t copy others
  • Doesn’t gain new words
  • Doesn’t have at least 6 words
  • Doesn’t notice or mind when a caregiver leaves or returns
  • Loses skills he once had

 

At 24 Months, talk to your child’s doctor if your child:

  • Doesn’t use 2-word phrases (for example, “drink milk”)
  • Doesn’t know what to do with common things, like a brush, phone, fork, spoon
  • Doesn’t copy actions and words
  • Doesn’t follow simple instructions
  • Doesn’t walk steadily
  • Loses skills she once had

 

If your child has received an Autism diagnosis, read our blog, Your Child Has Been Diagnosed With Autism – Now What? and check out our Parent Resources.


We are also here to answer any of your questions. As providers of ABA therapy services in St. Louis, Albuquerque, Omaha and Oklahoma City, we know the ins and outs of all things Autism, from diagnosis to the day-to-day routine of caring for a child with ASD. Let our experience guide your way to giving your child the best care they can receive. 


03 May, 2024
Being a parent of a neurodiverse child has its own set of challenges. Challenges that can be so unique that a practitioner may have to get creative with evidenced-based interventions. Being a parent of a neurodiverse child AND a practitioner is a completely different story. Especially 10-15 years ago. Let’s talk about this. Many years ago, I knew my then 2-year-old daughter was different. Whenever anyone asked me how she was different, I could never put my thoughts adequately into words. “She is just different.” The general response would be, “Well, she just NEEDS discipline. Spank her, put her in time out.” I had so many conflicting feelings about this. My instincts were screaming “THIS IS NOT RIGHT!” My brain was at battle with myself daily. I fought negative thoughts and comments from family telling me I was not a good mother or parent, and my child was unruly. At 2 years old, my daughter was engaging in screaming, kicking, biting, hair pulling, crying, scratching, punching and slapping behaviors during transitions from the home to the community. She did not prefer ANY change to routine, did not like various smells, lighting, and sounds. She struggled with social and play skills with peers and only wanted one person, ME, her “momma”. Getting the Diagnosis: Fast forward through years of struggles, heartache, trauma and being ostracized (not only myself but my child by family and peers), she got a diagnosis! After visiting numerous physicians (so many I lost count) and countless misdiagnoses, she was FINALLY diagnosed at the age of 10 years old with Asperger’s Syndrome. The uphill battle began with family, friends and her school district. During this entire time, I continued to hear what a terrible mother I was and witnessed my child being excluded from school functions by her peers and being bullied daily. Helping as a Parent: I accessed any resource I could to help her. There was not much to choose from. Most of the resources were for children with level 3 autism spectrum disorders or significant behavioral issues such as drug or alcohol dependency. Nothing, absolutely nothing, for a high functioning child with sensory and social skill needs. At that time, the only true resource we had available was an intensive parent training program and ABA services for my daughter. During this time, I saw her blossoming. It gave me hope. It inspired me to get into this field I so adore today. I say all of this NOT to discourage parents from seeking help. I share my story to reflect on how much this field has changed in 10+ years. Today, the resources are plentiful. Private and public ABA resources from schools to individual companies and government funded programs. ABA practices focusing on assent-based, trauma-informed, evidence-based interventions. Absolutely incredible the amount of assistance to help our children of all ages. Trust your Gut! As I reflect on these changes, I can’t help but wonder how all of these resources would have impacted my daughter and my other children like her not so long ago. My momma heart swells with pride thinking of how much she has overcome to get where she is today. For all the parents out there who may be listening to the “noise” of others, DON’T. Follow your instincts, seek the resources, advocate for your child. You got this! Lori Vitello, MA, BCBA, LBA Autism Learning Collaborative St. Louis In-Home Branch Assistant Clinical Director www.autismlearningcollaborative.com
11 Mar, 2024
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20 Feb, 2024
Receiving an autism diagnosis for your child can evoke a complex tapestry of emotions, from confusion and concern to love and determination. As parents embark on this journey together, supporting each other becomes as crucial as supporting their child. This blog explores the emotional dynamics within families navigating an autism diagnosis, offering practical advice to foster resilience, communication, and a balanced approach to caregiving. Understanding the Emotional Impact The initial phase following a diagnosis can be overwhelming. Acknowledging your feelings and giving yourself permission to experience a wide range of emotions is a crucial first step. It's important to remember that feelings of grief, frustration, and even relief are normal as parents come to terms with their new reality. Communication is Key Open and honest communication between parents is foundational. Regular check-ins where each person can express their feelings, fears, and hopes without judgment can strengthen your partnership. Consider establishing a weekly 'heart-to-heart' session where you can discuss not just the challenges but also the victories, no matter how small. Supporting Each Other Supporting each other doesn't always mean having all the answers. Sometimes, it's about listening or simply being there. Develop a code word or signal for those moments when you're feeling overwhelmed and need a break or extra support. This can help maintain a supportive environment even in the midst of stress. Finding Balance Finding balance between caregiving, personal well-being, and your relationship can seem like a daunting task. It's essential to carve out time for self-care and each other, apart from your roles as parents. Engaging in individual hobbies or activities and scheduling regular date nights or activities as a couple can help maintain a strong bond. Practical Strategies for Caregiving Educate Yourselves Together: Learning about autism as a team can help align your understanding and approach to care. Websites like Autism Speaks (www.autismspeaks.org) offer comprehensive resources for families. Create a Support Network: Connecting with other families navigating similar experiences can provide emotional support and practical advice. Online forums and local support groups can be valuable resources. The Autism Society (www.autism-society.org) is a good starting point for finding community connections. Seek Professional Guidance: Sometimes, professional support is necessary to navigate the complexities of autism. Family therapy or counseling can provide strategies to strengthen your relationship and family dynamics. Apara Autism offers free consultations, you can schedule yours here. Focus on Strengths: Every child with autism has a unique set of strengths and abilities. Celebrate these strengths and incorporate them into daily activities and learning opportunities. Establish Routines: Children with autism often thrive on routine. Working together to establish and maintain consistent daily routines can benefit your child and reduce family stress. In Conclusion Navigating the emotional landscapes of autism requires patience, understanding, and teamwork. The journey is long, but together, you can navigate the challenges and celebrate the joys that come with raising a child with autism. By supporting each other, maintaining open communication, and taking care of your own well-being, you can build a strong foundation for your family and your child.
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19 Jan, 2024
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07 Jan, 2024
As the calendar turns to January, we embrace the spirit of new beginnings. This is a time for reflection, planning, and setting goals, not just for ourselves but also for the special children in our lives undergoing Applied Behavior Analysis (ABA) therapy. The new year brings a unique opportunity for therapists, parents, and children to collaboratively set realistic and meaningful goals in ABA therapy. Understanding the Importance of Goal-Setting in ABA Therapy ABA therapy is centered around the individual needs of each child with autism. Goal-setting in this context is not just about achieving specific skills or behaviors; it’s about creating pathways for children to realize their potential and improve their quality of life. Well-defined goals provide direction for therapy sessions and a framework for measuring progress. Collaborative Goal-Setting: A Team Effort One of the strengths of ABA therapy is its collaborative nature. Therapists, parents, and sometimes, depending on their age and ability, the children themselves, should be involved in the goal-setting process. This collaboration ensures that goals are not only tailored to the child’s needs but are also aligned with family values and real-life situations. Strategies for Identifying Goals Assessing the Child’s Current Abilities: Start by understanding the child’s strengths and areas where they need support. This can involve direct assessment by the therapist and input from parents and educators. Setting SMART Goals: Goals should be Specific, Measurable, Achievable, Relevant, and Time-bound. For instance, improving two-way communication skills over three months is a SMART goal. Prioritizing Goals: Not all goals are created equal. Some skills might be foundational and need to be achieved before others. Prioritize goals based on their impact on the child’s daily life and overall development. Measuring Progress Regular assessments and observations are crucial in tracking progress. Celebrating milestones, no matter how small, is important. Progress in ABA therapy is not always linear, and every small step forward is a victory. Tips for Parents Be Consistent: Try to reinforce the goals set in therapy at home. Consistency is key in ABA therapy. Stay Informed and Involved: Regular communication with the therapist can provide insights into how best to support your child’s goals at home. Celebrate Achievements: Acknowledge and celebrate your child’s achievements, however small they may seem. This encourages them and shows them the value of their efforts. Conclusion The new year is a time for new goals and fresh starts. In ABA therapy, setting achievable goals is essential for the continued progress of children with autism. By working together, therapists and parents can create a supportive and effective environment for these children to thrive in 2023 and beyond. Let’s use this opportunity to reflect on past achievements and chart a course for a year filled with growth and learning.
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